Post by worried on Feb 19, 2017 0:22:17 GMT -5
For those who may have not heard of this, but surely you would have heard of the Ice Bucket Challenge that went viral on the Internet last year, well, that's what it was for, an awareness of the incurable disease...
At the moment, it's just a possibility that I have it, I'm taking treatment at the moment as the doctor could not confirm whether I have this terminal illness just yet. Nevertheless, from all the symptoms that I currently have against MND symptoms described online that I searched around, it doesn't look all that good...
I do not know what to do really... am I afraid? well, yes and no... I know we all die someday, but knowing the fact that if I truly have this incurable disease, I may die as soon as within 5 years... how should I break the news to my family?! I don't really want to see them suffer and worry, but I know I will have to tell them eventually... so hard...
It was a sleepless night last night, couldn't really go to sleep, with all the memory flashes through my head, and thinking about what I'll need to do before I completely loose control of my physical abilities... right now, I have weakness in my shoulders, which is causing me inconvenience in doing daily routines like combing my hair, putting on my shirt, washing my hair in the shower... basically, anything thing that requires me lifting my arms over the shoulder... and the constant tickling tongue is causing me having problem speaking properly...
hopeless... I know I need to keep my mind positive and not to let negative thoughts beat me and wear me down... but really, it's just a shock to me to find myself in this situation...
At the moment, it's just a possibility that I have it, I'm taking treatment at the moment as the doctor could not confirm whether I have this terminal illness just yet. Nevertheless, from all the symptoms that I currently have against MND symptoms described online that I searched around, it doesn't look all that good...
I do not know what to do really... am I afraid? well, yes and no... I know we all die someday, but knowing the fact that if I truly have this incurable disease, I may die as soon as within 5 years... how should I break the news to my family?! I don't really want to see them suffer and worry, but I know I will have to tell them eventually... so hard...
It was a sleepless night last night, couldn't really go to sleep, with all the memory flashes through my head, and thinking about what I'll need to do before I completely loose control of my physical abilities... right now, I have weakness in my shoulders, which is causing me inconvenience in doing daily routines like combing my hair, putting on my shirt, washing my hair in the shower... basically, anything thing that requires me lifting my arms over the shoulder... and the constant tickling tongue is causing me having problem speaking properly...
hopeless... I know I need to keep my mind positive and not to let negative thoughts beat me and wear me down... but really, it's just a shock to me to find myself in this situation...
